Care received in Primary Health Care: perspective of patients in palliative oncological care and their families

Authors

  • Juliane Maria Guedes de Carvalho Universidade Estadual de Maringá
  • Gabriel Zanin Sanguino Universidade Estadual de Maringá
  • Jordhan Abner Teixeira Murilho Universidade Estadual de Maringá
  • Lucas Eduardo de Oliveira Universidade Estadual de Maringá
  • Mateus Souza da Luz Univel Centro Universitário
  • Sonia Silva Marcon Universidade Estadual de Maringá
  • Mayckel da Silva Barreto Universidade Estadual de Maringá

DOI:

https://doi.org/10.26694/reufpi.v14i1.5336

Keywords:

Palliative Care, Hospice Care, Primary Health Care, Unified Health System, Family

Abstract

Objective: to understand how health care is provided in Primary Health Care from the perspective of oncological patients in palliative care and their families. Methods: descriptive-exploratory study, with a qualitative approach, carried out with patients diagnosed with cancer in palliative care and their families. Data collection took place between September and November 2023, using open-ended interviews, guided by a semi-structured instrument. The audio recorded was transcribed in full and later analyzed using Content Analysis. Results: two thematic categories were identified: “Health care provided by Primary Health Care” and “Satisfaction with care despite obstacles perceived”. Health care involved referrals to specialists, support in the initial diagnosis and treatment of the physical consequences of the disease. Despite the obstacles experienced, such as delays and lack of professional training, the participants perceived the care as satisfactory. Conclusion: : palliative care is not present in the daily routine of Primary Health Care, which to some extent may reflect the need for professional training. 

Author Biographies

Juliane Maria Guedes de Carvalho, Universidade Estadual de Maringá

Universidade Estadual de Maringá, Departamento de Enfermagem, Maringá, PR, Brasil.

Gabriel Zanin Sanguino, Universidade Estadual de Maringá

Universidade Estadual de Maringá, Departamento de Enfermagem, Maringá, PR, Brasil.

Jordhan Abner Teixeira Murilho, Universidade Estadual de Maringá

Universidade Estadual de Maringá, Departamento de Enfermagem, Maringá, PR, Brasil.

Lucas Eduardo de Oliveira, Universidade Estadual de Maringá

1Universidade Estadual de Maringá, Departamento de Enfermagem, Maringá, PR, Brasil.

Mateus Souza da Luz, Univel Centro Universitário

Univel Centro Universitário, Departamento de Enfermagem, Cascavel, PR, Brasil.

Sonia Silva Marcon, Universidade Estadual de Maringá

Universidade Estadual de Maringá, Departamento de Enfermagem, Maringá, PR, Brasil.

Mayckel da Silva Barreto, Universidade Estadual de Maringá

Universidade Estadual de Maringá

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Published

2025-02-19

How to Cite

1.
Carvalho JMG de, Sanguino GZ, Murilho JAT, Oliveira LE de, Luz MS da, Marcon SS, et al. Care received in Primary Health Care: perspective of patients in palliative oncological care and their families. Rev Enferm UFPI [Internet]. 2025 Feb. 19 [cited 2025 Apr. 3];14(1). Available from: https://periodicos.ufpi.br/index.php/reufpi/article/view/5336

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