Quality of life of informal caregivers of aged people with alzheimer's disease during the COVID-19 pandemic

Autores

  • Monique Teresa Amoras Nascimento
  • Dayara de Nazaré Rosa de Carvalho
  • Fernando Conceição de Lima
  • Dandara de Fátima Ribeiro Bendelaque
  • Fabianne de Jesus Dias de Sousa
  • Fabiana de Souza Orlandi
  • Viviane Ferraz Ferreira de Aguiar

DOI:

https://doi.org/10.26694/reufpi.v12i1.4295

Palavras-chave:

Alzheimer Disease, Caregivers, Aged, Coronavirus, Quality of life

Resumo

Objective: To reveal the quality of life of informal caregivers of aged people with Alzheimer's disease in times of the COVID-19 pandemic. Method: A descriptive and qualitative study conducted through semi-structured interviews with 12 informal caregivers of older adults, selected by convenience. Data processing was performed using the IraMuTeQ software and class analysis using the Strauss and Corbin method, from which 4 classes emerged, namely: Social network and change in the routine of informal caregivers during the COVID-19 pandemic period; Factors that interfere with the QoL of informal caregivers; How informal caregivers experience the Alzheimer's disease diagnosis; and Feelings awakened by the burden of informal caregivers of aged people with AD. Results: The female profile stood out, with emphasis on caregivers aged from 40 to 49 years old, married, incomplete High School, and performing this role for more than five years and full-time. The factors that interfere with quality of life are lack of time, care burden, lack of leisure, few social activities and feelings of sadness, anxiety, nervousness, depression and despair. Conclusion: It was verified that the aspects found were impacted even more during the COVID-19 pandemic period, which reconfigured the routine of older adults with Alzheimer's and of...

Referências

Vollset SE, Goren E, Yuan CW, Cao J, Smith AE, Hsiao T, et al. Fertility, mortality, migration, and population scenarios for 195 countries and territories from 2017 to 2100: a forecasting analysis for the Global Burden of Disease Study, The Lancet. [Internet]. 2020 July 14 [cited 2022 out. 10]; 396: 1285–306. Available from: https://www.thelancet.com/article/S0140-6736(20)30677-2/fulltext.

Ripple WJ, Wolf C, Newsome TM, Barnand P, Moomaw WR. World Scientists’ Warning of a Climate Emergency, BioScience, [Internet]. 2020 Jan; 70(1): 8–12. Doi: https://doi.org/10.1093/biosci/biz088

Echeverría A, Astorga C, Fernández C, Salgado M, Villalobos Dintrans P. Funcionalidad y personas mayores: ¿dónde estamos y hacia dónde ir?. Rev Panam Salud Publica. [Internet]. 2022 Apr 14; 46:e34. Available from: Doi: https://doi.org/10.26633/RPSP.2022.34

Marques YS, Casarin F, Huppes B, Maziero BR, Gehlen MH, Ilha S. Doença de alzheimer na pessoa idosa/família: potencialidades, fragilidades e estratégias. Cogitare Enferm [Internet]. 2022;27:e80169. Doi: https://doi.org/10.5380/ce.v27i0.80169

Lynch C. World Alzheimer Report 2019: Attitudes to dementia, a global survey. Alzheimers dememt. 2020 Dec 7; 16(Supl.10):e038255 Doi: https://doi.org/10.1002/alz.038255.

Moreira ML, Bucher-Maluschke JSNF, Silva JC, Falcão DVS. Cuidadores informais de familiares com Alzheimer: vivências e significados em homens. Contextos Clínicos 2018; 11(3): 373-85. https://dx.doi.org/10.4013/ctc.2018.113.08.

Dadalto EV, Cavalcante FG. O lugar do cuidador familiar de idosos com doença de Alzheimer: uma revisão de literatura no Brasil e Estados Unidos. Ciênc saúde colet. 2021 Jan; 26(1):147-57. Doi: https://doi.org/10.1590/1413-81232020261.38482020.

Sanches R de CN, Santos FTG, Radovanovic CAT. Construção e validação de questionário para avaliação das competências do cuidador informal. Cogitare Enferm [Internet]. 2021 Nov 22;26:e73966. Doi: https://doi.org/10.5380/ce.v26i0.73966.

Costa EMDMC, Lucena MM, Estrela YCA, Oliveira Neto HT, Brito EPR, Rezende ACC, et al. Impactos na qualidade de vida de cuidadores de idosos portadores de Alzheimer. Braz Jour Heal Rev. [Internet]. 2021;4(2): 7726 – 41. Doi: https://doi.org/10.34119/bjhrv4n2-309.

Hammerschmidt KSA, Santana RF. Saúde do idoso em tempos de pandemia Covid-19. Cogitare enferm. [Internet]. 2020 Apr;25:e72849. https://dx.doi.org/10.5380/ce.v25i0.72849.

Nardi EFR, Sawada NO, Santos JLF. Associação entre a incapacidade funcional do idoso e a sobrecarga do cuidador familiar. Rev. Latino-Am Enfermagem. 2013 Sept-Oct; 21(5): 1-8. Doi: https://doi.org/10.1590/S0104-11692013000500012.

Peçanha T, Goessler KF, Roschel H, Gualano B. Social isolation during the COVID-19 pandemic can increase physical inactivity and the global burden of cardiovascular disease. Am J Physiol Heart Circ Physiol [Internet]. 2020 May 20; 318(6): H1441–6. Doi: https://doi.org/10.1152/ajpheart.00268.2020.

Rezende CP, Nascimento MMG, França AP, Santos ASA, Oliveira IV, Oliveira DR. Caring for elderly people during the COVID-19 pandemic: the experience of family caregivers. Rev Gaúcha Enferm [Internet]. 2022;43:e20210038. Doi: https://doi.org/10.1590/1983-1447.2022.20210038.en.

Garcia CR, Cipolli GC, Santos JP dos, Freitas LP, Braz MC, Falcão DV da S. Cuidadores Familiares de Idosos com a Doença de Alzheimer. Kairós-Gerontologia [Internet]. 30º de março de 2017 [citado 10º de julho de 2023];20(1):409-26. Disponível em: https://revistas.pucsp.br/index.php/kairos/article/view/2176-901X.2017v20i1p409-426.

Casal J, Mateu E. Tipos de Muestreo. Rev. Epidem. Prev. Med. 2003; [cited 2023 jan. 10];1(1):3-7. Available from: https://www.coursehero.com/file/9890875/TiposMuestreo1

Patias ND, Hohendorff JV. Critérios de qualidade para artigos de pesquisa qualitativa. Psicol Estud [Internet]. 2019;24:e43536. Available from: Doi: https://doi.org/10.4025/psicolestud.v24i0.43536

Souza MAR, Wall ML, Thuler ACMC, Lowen IMV, Peres AM. The use of IRAMUTEQ software for data analysis in qualitative research. Rev Esc Enferm USP. 2018;52:e03353.. Available from: http://dx.doi.org/10.1590/S1980-220X2017015003353

Klant LM, Santos VS. O uso do software IRAMUTEQ na análise de conteúdo - estudo comparativo entre os trabalhos de conclusão de curso do ProfEPT e os referenciais do programa. RSD. 2021; 10(4): e8210413786: 1-15. Doi: https://doi.org/10.33448/rsd-v10i4.13786.

Santos FGT, Zulin A, Cardoso LCB, Sanches RCN, Rego AS, Girardon-Perlini NMO, et al. Factors associated with the skills of informal caregivers in home care. Rev Bras Enferm. 2022; 75(4): e20210744. Available from: Doi: https://doi.org/10.1590/0034-7167-2021-0744.

Anjos ZS, Lohmann PM, Medeiros CRG, Brietzke AP. Assistência de enfermagem na doença de Alzheimer: uma revisão integrativa. RSD [Internet]. 2022 May 28 [cited 2022 nov 11];11(7):e37911728874. Available from: https://rsdjournal.org/index.php/rsd/article/view/28874.

Queiroz JPC, Machado ALG, Vieira NFC. Health literacy for caregivers of elders with alzheimer’s disease. Rev Bras Enferm [Internet]. 2020;73:e20190608. Doi: https://doi.org/10.1590/0034-7167-2019-0608

Martins G, Corrêa L, Caparrol AJS, Santos PTA, Brugnera LM, Gratão ACM. Sociodemographic and health characteristics of formal and informal caregivers of elderly people with Alzheimer’s Disease. Esc Anna Nery [Internet]. 2019;23(2):e20180327. Doi: https://doi.org/10.1590/2177-9465-EAN-2018-0327.

Queiroz RS, Camacho ACLF, Gurgel JL, Assis CRC, Santos MLSC. Perfil sociodemográfico e qualidade de vida de cuidadores idosos com demência. Rev Bras Geriatr Gerontol [Internet]. 2018 Apr/Mar; [cited 2018 Sep]; 21(2):205-14. Available from: http://www.scielo.br/scielo.php?pid=S1809-98232018000200205&script=sci_arttext&tlng=pt.

Silva MF, Silva DSM, Bacurau AGM, Francisco PMSB, Assumpção D, Neri AL, et al. Ageism against older adults in the context of the COVID-19 pandemic: an integrative review. Rev Saúde Pública [Internet]. 2021;55:4. Doi: https://doi.org/10.11606/s1518-8787.2021055003082.

Lopes CC, Oliveira GA, Stigger FS, Lemos AT. Associação entre a ocorrência de dor e sobrecarga em cuidadores principais e o nível de independência de idosos nas atividades de vida diária: estudo transversal. Cad. saúde colet. 2020 Jan-Mar; 28(1):98-106. Doi: https://doi.org/10.1590/1414-462X202028010184.

Barbosa IEB, Mota BS. O impacto na qualidade de vida do cuidador do idoso com doença de alzheimer. Rev. Enferm. Atual In Derme [Internet]. 2023 Feb 8 [cited 2023 May 05];97(1):e023020. Available from: https://www.revistaenfermagematual.com.br/index.php/revista/article/view/1562.

Batista IB, Marinho JS, Brito TRP, Guimarães MSA, Silva Neto LS da, Pagotto V, et al. Qualidade de vida de cuidadores familiares de pessoas idosas acamadas. Acta paul enferm [Internet]. 2023;36:eAPE00361. Doi: https://doi.org/10.37689/acta-ape/2023AO00361.

Silva GDO, Martins G, Rocha LA, Machado MT, Pott Junior H, Gratão ACM. Sobrecarga e sintomas psicológicos em cuidadores informais de idosos na pandemia da COVID-19. Rev Gaúcha Enferm [Internet]. 2022 Nov 21 [cited 2023 May 8];43(ESP). Available from: https://seer.ufrgs.br/index.php/rgenf/article/view/128590.

Gaioli CCLO, Furegato ARF, Santos JLF. Perfil de cuidadores de idosos com a doença de Alzheimer associado à resiliência. Texto contexto-enferm. 2012 Mar; 21(1): 150-7. Doi: https://doi.org/10.1590/S0104-07072012000100017.

Anjos KF, Boery RNSO, Pereira R, Pedreira LC, Vilela ABA, Santos VC, et al. Associação entre apoio social e qualidade de vida de cuidadores familiares de idosos dependentes. Ciênc. saúde coletiva. 2015 May; 20(5):1321-30. Doi: https://doi.org/10.1590/1413-81232015205.14192014.

Couto AM, Castro EAB, Caldas CP. Vivências de ser cuidador familiar de idosos dependentes no ambiente domiciliar. Rev Rene [Internet]. 2016 Feb 21; [cited 2023 May 4];17(1):76-5. Available from: http://www.periodicos.ufc.br/rene/article/view/2624.

Mattos EBT, Francisco I da C, Pereira GC, Novelli MMPC. Grupo virtual de apoio aos cuidadores familiares de idosos com demência no contexto da COVID-19. Cad Bras Ter Ocup [Internet]. 2021;29:e2882. Doi: https://doi.org/10.1590/2526-8910.ctoRE2201

Souza LJ, Farias RCP. Violência doméstica no contexto de isolamento social pela pandemia de covid-19. Serv Soc Soc [Internet]. 2022 May; (144):213–32. Doi: https://doi.org/10.1590/0101-6628.288.

Banskota S, Healy M, Goldberg EM. 15 Smartphone apps for older adults to use while in isolation during the COVID-19 Pandemic. West J Emerg Med. 2020;21(3):514–25. Doi: https://doi.org/10.5811/westjem.2020.4.47372.

Huali W, Li T, Barbarino P, Gauthier S, Brodaty H, Molinuevo JL et al. Dementia care during COVID-19. The Lancet. 2020 Apr 11; 395:10231:1190-91. http://dx.doi.org/10.1016/S0140-6736(20)30755-8.

Holmes EA, O’Connor RC, Perry VH, Tracey I, Wessely S, Arseneault L, et al. Multidisciplinary research priorities for the COVID-19 pandemic: a call for action for mental health science. The Lancet Psychiatry, [Internet]. 2020 Apr 15; 7(6): 547-560. http://dx.doi.org/10.1016/S2215-0366(20)30168-1.

Mattos EBT, Kovács MJ. Doença de Alzheimer: a experiência única de cuidadores familiares. Psicol USP. 2020; 31:e180023. Doi: https://doi.org/10.1590/0103-6564e180023.

Andrade SMB, Marinho MS, Santana ES, Chaves RN, Oliveira AS, Reis LA. Associação entre os aspectos sociodemográficos, condições de saúde e qualidade de vida dos cuidadores de idosos dependentes. Fisioter. Bras. 2019 Oct 24; 20(5). Doi: https://doi.org/10.33233/fb.v20i5.2385.

Rabelo ES, Lopes SC. A DEMÊNCIA NA TERCEIRA IDADE: a família no enfrentamento da doença, tendo como referência a ABRAz de São Luís, MA. Rev. Bibliomar [Internet]. 2018;16(2):7-28. Disponível em: https://periodicoseletronicos.ufma.br/index.php/bibliomar/article/view/8806.

Dias ES, Moura HFS, Tannus CDA, Pacheco MP, Lemos GVL, Soares MIS, et al. Conflitos emocionais em cuidadores de pacientes com doença de alzheimer. Braz. J. Develop. [Internet]. 2020 May 19 [cited 2023 May 5];6(5):29036-50. Available from: https://ojs.brazilianjournals.com.br/ojs/index.php/BRJD/article/view/10285.

Scherrer G, Okuno MFP, Oliveira LM, Barbosa DA, Alonso AC, Fram DS, et al. Quality of life of institutionalized aged with and without symptoms of depression. Rev Bras Enferm [Internet]. 2019;72:127–33. Doi: https://doi.org/10.1590/0034-7167-2018-0316.

Nunes DP, Silva MJ, Brilhante BI, Ferreira CFY, Batello VVATG, Santos SSJ. et al. Apoio emocional a cuidadores de idosos: vivência de voluntários do projeto escuta solidária. Cap. Dour.: Dial. Ext. [Internet]. 2020 May 30[cited 2023 May 8];3(2):199-208. Available from: https://sistemas.uft.edu.br/periodicos/index.php/capimdourado/article/view/9799.

Ughes MC, Liu Y, Baumbach A. Impact of COVID‑19 on the health and well‑being of informal caregivers of people with dementia: a rapid systematic review. Gerontol Geriatr Med. 2021;7:23337214211020164. Doi: https://doi.org/10.1177/23337214211020164.

Publicado

2023-12-12

Como Citar

1.
Nascimento MTA, Carvalho D de NR de, Lima FC de, Bendelaque D de FR, Sousa F de JD de, Orlandi F de S, et al. Quality of life of informal caregivers of aged people with alzheimer’s disease during the COVID-19 pandemic . Rev Enferm UFPI [Internet]. 12º de dezembro de 2023 [citado 22º de julho de 2024];12(1). Disponível em: https://periodicos.ufpi.br/index.php/reufpi/article/view/4295

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